All The Things You Missed / Photo Dump

When we last left this story, I was tucked away at Marvin's enjoying our time together and planning another luxurious day with him including spa night and then... Tasha had to have an emergency appendectomy. Here's how my Nana brain works: Mama is in the hospital, Grandma and Papa are with Mama that leaves Daddy and ... Daddy's team to take care of baby girl. While I know that Austin is a good dad, I know his patience has a limit and I knew that when they dropped Cosy off, she was a little out of sorts about what was going on with mommy. So I cut my time with Marvin short and went back to help with Cosy. It ended up being a good thing because she got really emotional at bedtime and needed lots of Nana cuddles to settle down.

Have you slept with a three year old? I can't understand how someone so small can take up so much space! She did finally go to sleep and I finally got some sleep but it wasn't my normal rest and it certainly wasn't a night at Marvin's. Then Friday morning I had a doctor's appointment in Gainesville and of course, everyone else has to work so it was just me and my chickadee (gosh, she really hates it when I call her that... I can call her anything else - Princess, Monkey, etc... but if I call her "chickadee" she says, "I'm called Cosy"). My back is still not good and I'm trying so hard not to pick her up but sometimes when she's doing things in her own time, it's easier to just pick her up and move her rather than trying to convince her to move herself. I had several errands to run Friday and eventually mom was released from the hospital (she's fine) and Grandma came to pick up Cosy. I was absolutely wiped out and just rested the rest of Friday.

Then Saturday Oliver and Cody were coming up so I wanted to have Cosy come over. It's a lot of work, especially when I'm tired, to wrangle two three year olds. I mean, Cody is always there but I'm not a sit in a rocking chair and observe kind of Nana. I'm down on the floor with them, up and down the stairs with them, jumping on the bed... ok, I don't really jump on the bed. It is really important to me that Oliver and Cosy have a close bond. They may very well both end up as only children so it's important to me that they have each other. They definitely are thick as thieves when they're together... it requires a little refereeing with them from time to time but they definitely love each other.

at the dr with Nana

feeling artistic

 Backing up a bit in time... on Thursday night Oliver Facetimed while Cosy was with me and she just took over my phone and carried on her own little conversation with him, showing him the dog and the cat and toys and chatting away to him... giggling at how silly he is... it was the most complete conversation the two of them have ever had and it just melted my Nana heart into a little puddle. This is what I'm after with them! So although I was way too tired Saturday, I wanted Cosy and Oliver to be able to spend time together so I rallied. Tasha's parents had a church thing to do that was easier to do without Cosy anyways so it just made sense for her to hang out with me. BUT MAN... when everyone went home, I crashed so hard! Austin's girlfriend Jessi hung out with me for a little while and then I said, "I'm really going to need a nap... " and she went and took one too, I think.

2018 is the summer of swimming in buckets

 

So basically what I'm saying is that I've just been either ON DUTY or RECOVERING continuously since my last blog post. I'm also on a new kind of muscle relaxer and it's making me feel really doped up. The other one made me sleepy but I was used to it and at the very least, it worked great. They just needed to increase the dosage of the one I was on and it requires a lot of documentation because it's strong stuff - usually given with things like muscular dystrophy and other muscle wasting kind of disorders. That's how bad my muscle spasms are... anyways... we needed more documentation for the insurance to cover it so they have me on a different kind in the meantime and... I just don't know that it's going to work. I feel drugged up and it doesn't work as well.

Saturday Morning BP

And my blood pressure is still high. Today it's 165/105 and I feel horrible from it. I have an appointment for a follow up in three weeks. I can call in the meantime and they'll probably do what they did when I called a few weeks ago - adjust medication - but I really just need a good sit down with the doctor and a discussion on the next level of intervention because what we're doing isn't working. The thing is... as long as it's hot outside, I don't care to do anything that involves leaving my air-conditioned space.

Marvin and I did have a nice lunch date on Thursday before I came back home. We went out for Italian at this place called Biba's near his house. I had the chicken parmesan... he had some kind of chicken pasta special and we had fried calamari. Other than that I'm eating healthy (ha!). It was enough food that it fed me for lunch that day, Austin and Jessi for dinner that night and me for dinner the next night. I'm picking our big adventure lunch date for next week and I have NO IDEA what I want to do. So Atlanta area folks, give me some suggestions for a fun lunch date restaurant that you might like to have me review for you next week.

fried calamari

chicken parmesan

In other news... Pop is doing the show Sweet Charity in Habersham County and I think he's having fun. He's had a bad cough/cold over the past week that has really sidelined him. I've been trying to get him to go get an antibiotic and he's been... totally ignoring me. Even Cosy, when she heard him coughing early on Friday morning said, "Awww... Pop will be ok...". Bless her sweet little heart... when the nurse at my doctor's office told her Friday morning, "I hope your mommy feels better soon... " Cosy just looked at her and shook her head and said, "Poor Mommy...." she's such a little mother.

Hugging/Wrestling... who knows?

He has a mouthful of popcorn

And... I think that's it. I'm going to include some photos and leave it here for now. I'm not trying to be a bad blogger... I'm just too tired for intelligent thought. Hope you've had a great weekend! Love and hugs!

What A Day! Food Friday - The Big Grocery Haul

I probably have no business trying to write a blog post today because I am so freaking tired! I slept poorly last night and have had the devil of a time trying to get some necessary prescription refills today... I'm really feeling salty... but I'll give it a shot and if it's fit to publish, I will.

Last month, like an idiot, when I left the pain doctor I headed straight down to Marvin's (that's not the dumb part). Instead of filling my prescription at my usual pharmacy, I went to (what I thought was) the same pharmacy at the location close to his house. It's really complicated because Walgreen's has bought out all the Rite Aid pharmacies in our area. My local pharmacy is literally a Walgreen's Pharmacy in a Rite Aid building. My Spidey Sense told me at the time that it was going to be a problem and I wish I had listened to that inner voice saying, "nothing in life is this simple" because... it's true. Well, that Rite Aid location completely shut down and the prescriptions on file were transferred to the Walgreen's across the street. That's a Walgreen's and my usual pharmacy is a Walgreen's so... easy, peasy, right?  Notsomuch. My Walgreen's Pharmacy in a Rite Aid building is not on the Walgreen's computer system so... in the eyes of the DEA (Drug Enforcement Agency) I am "pharmacy shopping" with a controlled substance.

So... when my local pharmacist told me this morning that she couldn't transfer the prescriptions to my local pharmacy, she presented me two options: either go to the pharmacy near Marvin's house (45 minute drive away) or have my doctor call in the prescription to my local pharmacy. She said, "if your doctor will call me, I'll explain that it's really not your fault, it should not have been a problem, you couldn't have known..." etc, etc. Instead the nurse from my doctor's office calls and says, "why were you filling your prescription in Flowery Branch instead of at your local pharmacy?" My internal answer was, "none of your blankety blank business" but... like the polite drug seeking patient that I am... I said, "because I was going to be down there for a few days and needed refills so rather than drive all the way to Cleveland (the opposite direction) when I left  your office, I filled the prescription at the location that was nearest to where I was going to be". "You can't do that". Apparently. I swore on the lives of my grandchildren that I would never, ever, ever attempt to fill a prescription anywhere else in the world except my local pharmacy and she said the doctor would call in the prescriptions to save me from having to drive an hour and a half round trip for a refill.

Except... he didn't call in the prescriptions and they closed for the weekend at 2pm and... too bad for Heather. It's so frustrating. It makes me mad at the pharmacy for being in transition and making things so darn confusing. It makes me mad at the DEA for treating chronic pain patients like criminals. And it makes me mad at my doctor who knows, better than anyone, how severe the withdrawals are from these medications and what living hell it will make my life if I don't drive down to Flowery Branch to pick them up. My doctor also knows, better than anyone, how painful an hour and a half drive would be for me. What I'm going to do, rather than make the drive, is let Cody pick them up for me on his way up here tomorrow and just suffer overnight. BUT I'm not HAPPY about it, trust me!

Anyways... it's Food Friday so I will try to be on topic for a minute and talk about food. I didn't do a restaurant review this week but I will tell you where-all we ate on date night (and day and night and day) this week. On  Tuesday night we went to our usual Tuesday night - on the way to or from softball place - Twisted Taco. I had the ahi tuna tacos in wonton shells with sesame sauce because they are absolutely amazing and I love them with a purple passion. Marvin usually has the Korean taco (hold the mushrooms), the tropical shrimp taco and the ... wild Alaskan taco (I think... ). They also have really good chips and salsa and mine comes with a lot of extra avocado which we both munch on with the chips. Wednesday for lunch we went to Atlanta Highways Seafood Market which... if you're near Gainesville, Georgia, is the best place to go for seafood. It's incredibly fresh and quick and they're super nice there. I had fried crawfish tails because... yum... and Marvin had fried crawfish tails and fried catfish (and I shared some of his catfish and fries because... that's what we do). I bought some ceviche from there for my dinner Wednesday night (because Marvin eats at work on Wednesday and Thursday for dinner). On Thursday we went to our favorite little Chinese restaurant near him - it's called the Golden Phoenix but we always call it the Happy Lucky Golden Seven Phoenix because it used to be called the ... something Seven.... and we could never remember the exact name. I had shrimp fried rice because their shrimp fried rice is the best I've had anywhere and he had the General Tso's Chicken. It's a super affordable lunch menu so it was a win/win for us. Since we went to places that are our usual haunts, it didn't occur to me to take photos of our meals so you will just have to use your imagination.

Today I did a big grocery shop and a big food prep and I'm pretty stoked that I was that organized. I made a big batch of what I call "Three Bean Salad" but it's black beans, red beans and white beans (rinsed to remove lots and lots of sodium) with tomatoes, red onion, cucumbers, grilled chicken with olive oil and red wine vinegar and cilantro. I did my roasted salmon and veggies... I used tomatoes, sugar snaps, broccoli, carrots, zucchini and.... I think that's all. I've got enough food prepped to last me probably a week or more (if i don't eat more just because it's already prepped and ready to eat LOL!) AND I bought my favorite yogurt to have for breakfast because I'm pretty much addicted to it at this point. I'm fairly worn out from shopping without Austin and all the prep and cleanup but it's done and that feels great. Oddly enough my blood pressure was a happy, normal little 115/79 today after all of that so... who knows? Just the thought of eating better lowers my blood pressure. And I'm taking the beet root and... nothing else has really changed.

Tomorrow Cody and Oliver (and maybe Marquee) are coming up and I'll get Cosy in the morning so she and Oliver can play together. Marvin was such a sweetheart this week.... I sent him a text while he was at work Wednesday night and mentioned that I wanted to get the little swimming pool I had seen at his Walmart for the grandbabies... and he actually stopped on his way home from work after 9pm to get it. It's a good thing he did because it was the last one! He had a heckuva time getting it because the garden shop was closed and it was a real ordeal to get the upc code for it and then he couldn't do it through self-checkout and then he had a hard time getting it in his car (and was sure it wouldn't fit in mine but luckily it did!). I kept wondering why it was taking him so long to get home after work and he's out there getting the babies a pool. So they won't have to swim in buckets this time... all thanks to Marvin! He called this morning while I was in the middle of pharmacy hell and has had to listen to me whining about it all day. Sometimes I'm not so much fun to be around... a lot of times, probably... but he's a good egg and pulls me back from the brink when necessary.

And I guess that's about all I have to say today. Hopefully all will go according to plan and Cody will be able to pick up the prescriptions on his way up tomorrow... and the babies will be cooperative and I'll have some cute photos to share. How many of you are off for the whole week next week instead of just the 4th? Going anywhere fun? I've heard that this is supposed to be the biggest travel week of the whole Summer so safe travels or happy homebody week, whichever the case!

Pain Doctor Visit and Other Current Events

Today was my pain doctor visit. I see him every other month. It's crazy... I've been going to him for over 7 years now. I joked with the receptionist today that I'm an OG (Original Girl). I don't love going. I don't love the expense, for sure but it definitely helps me to check in frequently and know that my pain is legitimate and normal (for me, with my diagnosis'). I generally see the PA, who I adore for all visits except for once or twice a year and then he consults with the doctor before I leave. I thought it might be helpful to start recapping these visits again so I can remember my progress (not sure that's the right word) and for those who may have similar situations to know what my experience has been for comparison.

My list of diagnosis' is in the sidebar. There's a lot of stuff wrong with my back, nerve damage, migraines, Fibromyalgia and something of an autoimmune nature that we have yet to specifically isolate. I'm on several medications to help with pain although I am hesitant to list them so as not to be at risk for drug seekers. I do have a narcotic agreement with the pain doctor that requires me to submit to a urine screening at each visit... so that's always the first step once the nurse calls you back. Sometimes they will want to do a pill check which involves me bringing in all of the meds I take for anything - including advil - to be reviewed and listed. This time they did not ask me to do a pill check. Some pain doctors will call you randomly at any time and ask you to come in within a certain amount of time for a pill count. This will usually happen if someone appears to be taking medicines inappropriately or perhaps if a medicine they are prescribed does not show up in their screening. That urine screening is so sensitive that mine got flagged once for ibuprofen use... which is something that is approved for me to take but it wasn't listed at that time. It is a bit intimidating to know that anything I consume could come into question but if the alternative is living with pain, so be it. Truly, if ever pain medication were to stop being available to me, I would start using marijuana, whether or not it was legal. It becomes a quality of life issue.

After the nurse reviews your medicines, she will check vitals. My blood pressure today was 156/96 the first time... she did a recheck but I don't remember what that one was. I am on three blood pressure meds and other than yesterday (which I spent with Cosy) I had been resting almost nonstop since last Thursday night. It's frustrating and concerning to me that it's remaining high... however... it's a very clear indication that I'm in pain and ... although I would love to not have to be concerned about high blood pressure, I appreciate the validation so... yeah, high five, high bp! Way to represent! My heart rate was also high but.. that's not uncommon as I also have tachycardia. The cardiologist has already determined that my heart beats fast but in a healthy pattern so... that's ok.

After vitals, the nurse will go over your intake forms - a little questionnaire that you get from the receptionist when you check in. Basically it asks you to rate your pain on a scale of 1-10, 10 being the worst pain you've ever felt in your life. I don't do well with this scale because I rated it really high in the beginning because it was, literally, the worst pain ever but... it's gotten worse so...? It asks specific questions about what hurts, has your pain changed, is it getting better or worse and so forth. These forms are extremely important when you apply for disability!!! Fortunately for me, I am naturally articulate and my medical records helped win my disability case. I make sure that I always fill those forms out as completely as I can and don't cut corners or downplay things. At the pain doctor it's ok to be a whiner. You pay him to listen to you whine. It helps him know how to treat your pain.

Once the nurse has reviewed everything, the PA - we call him Dr. Matt - comes in to chat. He is the one who will go over any new pain, worsening pain, problems, side effects from meds... basically anything going on with me pain wise. I have a good rapport with Matt and I trust him. Today he discussed my migraines and blood pressure and suggested that I see a neurologist. He has been referring me for a procedure where they squirt meds up your nose to help with migraines. I'm not necessarily opposed to it but... my co-pay isn't cheap and so I've been putting it off. I told him that I'm still not really set, budget wise, for that procedure but I will request a referral to a neurologist.

Although I see the pain doctor for pain... my migraines for some reason fall under treatment of my primary care doctor so I will need to request the neurology referral from him. As with anything else... I hate the process. I hate making an appointment, doing the whole new patient intake.. the cost involved... having to remember what all has been done over the course of time with each diagnosis. It's a lot and my memory is pretty poor lately. Anyways... once Matt and I have finished our chat, he will check to see which medications need refills and then he will go consult with the doctor to get those and see if he has any recommendations. Thing he brings out the prescriptions and walks me to the receptionist with my chart so that I can make my next appointment.

Honestly, most visits the entire process is less than twenty minutes from in the door to out the door. If I'm scheduling a procedure it takes a good bit longer as there is always a wait to see the lady who schedules those things. There's a bit more involved such as getting insurance approval and determining the co-pay (and she's a bit chatty). For each visit to the pain doctor Medicare is billed $800. The agreed rate is much cheaper but it's still a few hundred and it does occur to me that there is a financial incentive for the pain doctor to keep me dependent on his care. At the end of the day, he's in business for a financial gain. All that being said... he is the doctor who has been involved in my case the longest and I do trust him, as much as you can trust someone who makes money off of you. When I was waiting for my disability to be approved he gave me samples of a lot of my meds, saving me literally hundreds of dollars a month. He started very conservative with my care. His office worked very well with my disability attorney and all of that matters to me. Would it be wise to maybe see another doctor for a second opinion on things like... would surgery help, etc? Maybe. The doctor who performs surgery has a financial incentive to recommend surgery so... who do I trust? It's hard to know.

At any rate... doctor visit done and dusted, I headed south for my weekly date. My guy also had a doctor's appointment this morning so I dropped off prescriptions at the pharmacy near his house and then met him at his house to store my groceries (I always bring yogurt and powerade and something to eat for dinner when he's working) before heading back out to his doctor. His visit went better than mine, fortunately. I haven't asked if it's ok to share what his medical issue has been lately so I will just say that he has given me a big scare in the past month. I am definitely glad to see him on the mend. We went and picked up my prescriptions and then headed out for lunch.

We love going to a place called Rico's World Kitchen in Buford for lunch. You can click the link to check them out. They are pricey but they have lunch specials that are affordable and we have never had anything there that wasn't absolutely amazing! We ate outside today although it was a bit humid, it's quieter out on the patio. Marvin loves this place because he can get Cheerwine there... if you're not familiar, Cheerwine is a cola that tastes a bit like Dr. Pepper but better. It's native to North Carolina which is where he was born. I like it ok... but carbonated beverages don't sit well on my stomach so I usually just get tea. Today he had a chicken salad sandwich on a croissant and I had a cheeseburger. We both got the house made potato chips... they are really yummy... and we shared an appetizer of fried green tomatoes. We probably go to this place once a month or so together and he goes by himself every now and then as well.

Once we got settled in back at his house we started watching the Netflix series Altered Carbon. It's ... futuristic and science fiction-ish and... two episodes in, I'm invested in the plot but I don't love it. Then Marvin left for work ... and I had my usual Wednesday night soak in the bathtub and watched One Born Every Minute on my phone while I soaked in the tub. Tonight's bath bomb of choice was cherry blossom from Walmart. Not my favorite but at least there wasn't any glitter in this one. My back has been bothering me quite a bit today so the hot bath was nice. I carried Cosy up the stairs yesterday because she had a hurt toe - the tiniest little injury is a big deal when you're a three year old little girl and I'm a sucker for baby-ing her when she has a booboo. I even made a big deal of bandaging her toe. She calls bandages "bambages" which is freaking adorable! Anyways... I know better than to carry her ever, especially up stairs so, it's my own fault.

I guess the most prevalent current event today is this Roseanne Barr thing. From my point of view, it's not ok to call someone an ape. Name calling is never ok. I'm not ok with the name-calling of our President, even though he's not my favorite person and... he does a fair amount of name calling himself. Two wrongs don't make a right. Ambien will for real make you lose your filter but ambien doesn't make you racist. The real tragedy is the rest of the cast and crew who have lost their jobs and it makes me sad when anyone says or does something that will forever haunt them. This is a life changer for Roseanne. And that's all I have to say about that.

Anyways... that was my Wednesday. Marvin will be off work in about twenty minutes so I'll get this posted and get my laptop tucked away for the night so I can enjoy his company. I have another Throwback Thursday blog post ready for tomorrow... although y'all aren't seeming to love those so... I don't know if I'll keep posting them after this week. Let me know what you think! Love and hugs, y'all!